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Our inspiration comes from a single source: the strength and courage of people living with neurodegenerative diseases and their families. While we are driven to one day end the suffering caused by these diseases, we want to help fulfill the need for community, support, and guidance at any stage of your journey.

Alzheimer’s Association

The Alzheimer’s Association has both a national office and local chapters that help to connect patients with care services, fund research, and advocate to the US government for more support for Alzheimer’s disease.

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Alzheimer’s Drug Discovery Foundation

The Alzheimer’s Drug Discovery Foundation’s (ADDF) mission is to rapidly accelerate the discovery of drugs to prevent, treat, and cure Alzheimer’s.

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ClinicalTrials.gov

ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. The link below is helpful for finding out details and contact information for ongoing trials.

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Compassionate Care ALS

Compassionate Care ALS supports people diagnosed with ALS, their families, communities and healthcare providers as they navigate the complexities, both physical and emotional, associated with the disease. CCALS offers an innovative approach to delivering support and services to clients, tailored to the needs of each individual and their support network.

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Cure Alzheimer’s Fund

Cure Alzheimer’s Fund is a non-profit dedicated to funding research with the highest probability of preventing, slowing, or reversing Alzheimer’s disease.

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EUpALS

EUpALS unites the European ALS Associations, companies and academic partners, to create equal rights for all Europeans with ALS and to provide better access to research and information about ALS.

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Everything ALS

EverythingALS is a patient-focused non-profit, bringing technological innovations and data science to support efforts – from care to cure -- for people with ALS, by offering an open-data platform for direct engagement with patients, caregivers, advocates, and researchers.

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Recent news

Read about the latest developments in our research, ongoing clinical trials, and what’s on the horizon for Amylyx.